Notes from a Spoon Theory Latecomer



November 2, 2014 fayguilian 1 Comment

Must belong to a ‘Spoonie’Today I found out about the Spoon Theory. I kept seeing people on my Twitter account saying that they were ‘spoonies’, or ‘spoon collectors’ and as embarrassed as I am to say it now, I really thought they were talking about belonging to one of those clubs that collects decorative spoons from all the states or countries where they have traveled.

Yeah I know, I’m not the sharpest nail on the bed, but that is honestly what I thought. Then I submitted one of my articles to an MS group and people started talking about the ‘spoon theory’ as if it belonged to our disease for some reason. I finally realized that spoon collecting didn’t have anything to do with those commemorative spoons and I was evidently missing the whole idea of what it meant. So I decided to Google it…okay in my case …I Yahooed it but, the point is still the same.

That is when I found Christine Miserandino’s video on YouTube. She told the story of how she and her good friend had a dinner conversation about her ‘invisible illness‘ – In Christine’s case that is Lupus. As a person with Multiple Sclerosis I have had plenty of practice hearing the well meaning friends who tell me ‘You don’t look sick!” Or “You look great even if you feel bad”

That is all well and good except that when people don’t see what is wrong they have no way of knowing what it feels like to be someone with chronic pain and chronic illness.

Enter SPOON THEORY! Christine Miserandino has a brilliant way of making it absolutely clear just how we function from day to day with something like MS, Fibromyalgia or Lupus.

I could try to tell you the story of the Spoon Theory…but why not let Ms. Miserandino herself tell you…she can do it so much better than I could.

After you see the video if you want to find out more about the Spoon Theory pop on over to

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